Patients

The Evidence Multiplier – experiences of clinical trials

The Evidence Multiplier – experiences of clinical trials

The Evidence Multiplier report explores using patients’ experiences of clinical trials to maximise knowledge and drive future success. Because Alterline has undertaken such extensive work on patient experience, it was surprising for us to discover the lack of attention that has been paid to this area of practice within clinical research − particularly given the enormous variation that we know…
Public and Clinician Engagement in Clinical Research

Public and Clinician Engagement in Clinical Research

Clinical research plays an essential role in the development of new medical initiatives from understanding patient behaviour through to the testing of life-changing drugs. This research can only be conducted with the participation of patients and clinicians and current levels of participation fall well short of what is required. Alterline were commissioned by the University Hospital Southampton (UHS) and the Clinical Research Network:…
‘Meningitis and Me’: new findings on the devastating impact of the disease inform strategic vision

‘Meningitis and Me’: new findings on the devastating impact of the disease inform strategic vision

It is estimated that around 500,000 people in the UK have had meningitis, an infectious disease that can kill within hours and for those that survive, the after-effects can be devastating and lifelong. We worked in partnership with the charity Meningitis Now, the founder of the UK meningitis movement, to undertake an extensive and ground-breaking study to uncover the impact of…
Report: Meningitis and Me – The devastating and life-long impact of a brutal disease

Report: Meningitis and Me – The devastating and life-long impact of a brutal disease

We worked in partnership with the charity Meningitis Now, the founder of the UK meningitis movement, to undertake an extensive and ground-breaking study to uncover the impact of meningitis on those it affects. You can download the report: Meningitis and Me, at the bottom of this page. It is estimated that around 500,000 people in the UK have had meningitis, an infectious…
Hidden Heartache – The untold story of bowel cancer

Hidden Heartache – The untold story of bowel cancer

  Every year in the UK more than 41,000 people are diagnosed with bowel cancer and it’s the second biggest cancer killer. But if diagnosed early, more than nine in ten people survive. Beating Bowel Cancer is the UK’s leading charity supporting the patients, family and friends affected by the condition. The charity’s vision is of a world where bowel…
Taking away anxiety for children using mental health services for the first time

Taking away anxiety for children using mental health services for the first time

When we spoke to young people using child and adolescent mental health services (CAMHS) in Trafford as part of our work around patient experience we were struck by how nervous they were before their first appointment. Often, the anxiety was made worse because they didn’t know what to expect – will I be lying on a couch talking about my…

New project announcement:

Meningitis Now

We are delighted to announce that we have been commissioned by Meningitis Now to conduct what we believe will prove to be a ground-breaking study into the impact of meningitis. As well as seeking to understand more about the effects on individuals and their families we will also be undertaking a detailed evaluation of the charity’s current support services. The evidence generated will inform the charity’s strategic plan and help guide the further development of their support model.

Meningitis Now are dedicated to funding research, raising awareness and providing support to people facing the devastating consequences of meningitis. The charity’s vision is “a future where no-one in the UK loses their lives to meningitis and everyone affected gets the support they need to rebuild their lives.”

‘’We’re excited to be working with the Alterline team to help us to further develop our understanding about the journey and needs of people who have had an experience of meningitis. We’re eager for this to help us develop our new strategic vision and ensure that Meningitis Now is using its resources in the most effective way in order to support people who have encountered meningitis in their lives. We are confident Alterline will deliver research that provokes action and supports our vision: “A future where no-one in the UK loses their lives to meningitis and everyone affected gets the support they need to rebuild their lives.”’

–          Sue Davie, CEO of Meningitis Now

New project announcement:

Bone Cancer Research Trust: The next chapter 

The Bone Cancer Research Trust has come on an incredible journey since it was founded by a dedicated group of bereaved parents in 2006. To-date they have funded research projects totalling over £2.2m and offered vital support to affected families.

With their 10th anniversary fast approaching, the Trust has commissioned Alterline to help them shape their strategy for the future. At the core of the project will be a quantitative and qualitative research study that captures the impact bone cancer has on those affected. This new, unique evidence base will put people affected by bone cancer at the heart of the Trust’s strategic objectives, and help build a brand personality that aligns with the Charity’s audience.

“We have come such a long way in just 10 years, but we have high ambitions to drive our research and work even further and faster. Bone Cancer Research Trust must be all ears if we’re going to ensure that we can offer the services, information and support that primary bone cancer patients and their families need. I’m confident that our partnership with Alterline will really help us understand people’s experiences and put this at the very core of our work.” 

– Julie Harrington, CEO of The Bone Cancer Research Trust