Patients

Evidence and engagement drive new strategic direction for National Osteoporosis Society

Evidence and engagement drive new strategic direction for National Osteoporosis Society

Since it was founded in 1986 the National Osteoporosis Society has come on an amazing journey and achieved a great deal for the awareness, diagnosis and treatment of osteoporosis in the UK. Approaching their 30th anniversary, the charity commissioned Alterline to support the development of a new strategic direction to ensure the organisation tackles the need and achieves impact into…

New project announcement:

Core: fighting digestive diseases

Digestive conditions are prevalent in the UK and a factor in 1 in 8 deaths. Core, the charity affiliated with the British Society of Gastroenterologists, supports medical research, provides information and raises awareness about digestive health.

Core has commissioned Alterline to conduct an ambitious research project to better understand the needs and priorities of people with digestive conditions and the charity’s wide stakeholder groups. Using quantitative and qualitative research methods, we will speak with people with a range of digestive conditions, as well as healthcare professionals, researchers, funders and related organisations to understand perceptions, needs and views on future priorities.

The research will be used by Core to inform and shape its organisational strategy, activities and brand identity.

The Evidence Multiplier – using patients’ experiences of clinical trials to maximise knowledge and drive future success

The Evidence Multiplier – using patients’ experiences of clinical trials to maximise knowledge and drive future success

Because Alterline has undertaken such extensive work on patient experience, it was surprising for us to discover the lack of attention that has been paid to this area of practice within clinical research − particularly given the enormous variation that we know exists in the experiences of participants in clinical trials. Recognising this as an opportunity to apply our expertise…
Public and Clinician Engagement in Clinical Research

Public and Clinician Engagement in Clinical Research

Clinical research plays an essential role in the development of new medical initiatives from understanding patient behaviour through to the testing of life-changing drugs. This research can only be conducted with the participation of patients and clinicians and current levels of participation fall well short of what is required. Alterline were commissioned by the University Hospital Southampton (UHS) and the Clinical Research Network:…
Research commissioned by The Brain Tumour Charity leads to new insights on the real lives of adults and children with brain tumours

Research commissioned by The Brain Tumour Charity leads to new insights on the real lives of adults and children with brain tumours

The Brain Tumour Charity is at the forefront of the fight to defeat brain tumours, making a difference every day to the lives of people with a brain tumour and their families. They fund pioneering research to increase survival, raise awareness of the symptoms and effects of brain tumours, and provide support for everyone affected, to improve quality of life.…
Bone Cancer Research Trust – new research on the impact of primary bone cancer marks a turning point for the charity

Bone Cancer Research Trust – new research on the impact of primary bone cancer marks a turning point for the charity

Primary bone cancer is a rare, yet brutal disease which can have a long-lasting impact on both patients and their families. With very few organisations focussing on the condition a group of bereaved parents came together and registered the Bone Cancer Research Trust in 2006 under the guidance of Professor Ian Lewis, Consultant Paediatrician and Adolescent Oncologist at St. James's…
‘Meningitis and Me’: new findings on the devastating impact of the disease inform strategic vision

‘Meningitis and Me’: new findings on the devastating impact of the disease inform strategic vision

It is estimated that around 500,000 people in the UK have had meningitis, an infectious disease that can kill within hours and for those that survive, the after-effects can be devastating and lifelong. We worked in partnership with the charity Meningitis Now, the founder of the UK meningitis movement, to undertake an extensive and ground-breaking study to uncover the impact of…
Hidden Heartache – The untold story of bowel cancer

Hidden Heartache – The untold story of bowel cancer

  "The team at Alterline worked hard to deliver a very comprehensive report that told a strong story about what people with bowel cancer and their families face. For many people who took part, it was the first time that they’d been able to express what they were going through. The finished report is a powerful read and call to…
Taking away anxiety for children using mental health services for the first time

Taking away anxiety for children using mental health services for the first time

When we spoke to young people using child and adolescent mental health services (CAMHS) in Trafford as part of our work around patient experience we were struck by how nervous they were before their first appointment. Often, the anxiety was made worse because they didn’t know what to expect – will I be lying on a couch talking about my…

New project announcement:

Meningitis Now

We are delighted to announce that we have been commissioned by Meningitis Now to conduct what we believe will prove to be a ground-breaking study into the impact of meningitis. As well as seeking to understand more about the effects on individuals and their families we will also be undertaking a detailed evaluation of the charity’s current support services. The evidence generated will inform the charity’s strategic plan and help guide the further development of their support model.

Meningitis Now are dedicated to funding research, raising awareness and providing support to people facing the devastating consequences of meningitis. The charity’s vision is “a future where no-one in the UK loses their lives to meningitis and everyone affected gets the support they need to rebuild their lives.”

‘’We’re excited to be working with the Alterline team to help us to further develop our understanding about the journey and needs of people who have had an experience of meningitis. We’re eager for this to help us develop our new strategic vision and ensure that Meningitis Now is using its resources in the most effective way in order to support people who have encountered meningitis in their lives. We are confident Alterline will deliver research that provokes action and supports our vision: “A future where no-one in the UK loses their lives to meningitis and everyone affected gets the support they need to rebuild their lives.”’

–          Sue Davie, CEO of Meningitis Now