Health

Bone Cancer Research Trust – new research on the impact of primary bone cancer marks a turning point for the charity

Bone Cancer Research Trust – new research on the impact of primary bone cancer marks a turning point for the charity

Primary bone cancer is a rare, yet brutal disease which can have a long-lasting impact on both patients and their families. With very few organisations focussing on the condition a group of bereaved parents came together and registered the Bone Cancer Research Trust in 2006 under the guidance of Professor Ian Lewis, Consultant Paediatrician and Adolescent Oncologist at St. James's…
‘Meningitis and Me’: new findings on the devastating impact of the disease inform strategic vision

‘Meningitis and Me’: new findings on the devastating impact of the disease inform strategic vision

It is estimated that around 500,000 people in the UK have had meningitis, an infectious disease that can kill within hours and for those that survive, the after-effects can be devastating and lifelong. We worked in partnership with the charity Meningitis Now, the founder of the UK meningitis movement, to undertake an extensive and ground-breaking study to uncover the impact of…
New brand for the Bone Cancer Research Trust: ‘Until there’s a cure’

New brand for the Bone Cancer Research Trust: ‘Until there’s a cure’

The Bone Cancer Research Trust has come on an incredible journey since it was founded by a dedicated group of bereaved parents in 2006. To date, they have funded research projects totalling over £2.2m and offered vital support to affected families.Approaching their 10th anniversary, the charity commissioned Alterline to help develop a new strategy and brand to ensure Bone Cancer…
Hidden Heartache – The untold story of bowel cancer

Hidden Heartache – The untold story of bowel cancer

  "The team at Alterline worked hard to deliver a very comprehensive report that told a strong story about what people with bowel cancer and their families face. For many people who took part, it was the first time that they’d been able to express what they were going through. The finished report is a powerful read and call to…
Taking away anxiety for children using mental health services for the first time

Taking away anxiety for children using mental health services for the first time

When we spoke to young people using child and adolescent mental health services (CAMHS) in Trafford as part of our work around patient experience we were struck by how nervous they were before their first appointment. Often, the anxiety was made worse because they didn’t know what to expect – will I be lying on a couch talking about my…

New project announcement:

Meningitis Now

We are delighted to announce that we have been commissioned by Meningitis Now to conduct what we believe will prove to be a ground-breaking study into the impact of meningitis. As well as seeking to understand more about the effects on individuals and their families we will also be undertaking a detailed evaluation of the charity’s current support services. The evidence generated will inform the charity’s strategic plan and help guide the further development of their support model.

Meningitis Now are dedicated to funding research, raising awareness and providing support to people facing the devastating consequences of meningitis. The charity’s vision is “a future where no-one in the UK loses their lives to meningitis and everyone affected gets the support they need to rebuild their lives.”

‘’We’re excited to be working with the Alterline team to help us to further develop our understanding about the journey and needs of people who have had an experience of meningitis. We’re eager for this to help us develop our new strategic vision and ensure that Meningitis Now is using its resources in the most effective way in order to support people who have encountered meningitis in their lives. We are confident Alterline will deliver research that provokes action and supports our vision: “A future where no-one in the UK loses their lives to meningitis and everyone affected gets the support they need to rebuild their lives.”’

–          Sue Davie, CEO of Meningitis Now

Growing up with Cystic Fibrosis: My student experience

Growing up with Cystic Fibrosis: My student experience

Being a student is a life changing experience for everyone; but Jodie's university years have been particularly unique. In our short film 'Growing up with cystic fibrosis', we explore Jodie’s student experience following her life-changing lung transplant at the age of 18. For information on joining the Organ Donor register please click here. Jodie spent a day with Noz and Meg from our team earlier…

New project announcement:

Bone Cancer Research Trust: The next chapter 

The Bone Cancer Research Trust has come on an incredible journey since it was founded by a dedicated group of bereaved parents in 2006. To-date they have funded research projects totalling over £2.2m and offered vital support to affected families.

With their 10th anniversary fast approaching, the Trust has commissioned Alterline to help them shape their strategy for the future. At the core of the project will be a quantitative and qualitative research study that captures the impact bone cancer has on those affected. This new, unique evidence base will put people affected by bone cancer at the heart of the Trust’s strategic objectives, and help build a brand personality that aligns with the Charity’s audience.

“We have come such a long way in just 10 years, but we have high ambitions to drive our research and work even further and faster. Bone Cancer Research Trust must be all ears if we’re going to ensure that we can offer the services, information and support that primary bone cancer patients and their families need. I’m confident that our partnership with Alterline will really help us understand people’s experiences and put this at the very core of our work.” 

– Julie Harrington, CEO of The Bone Cancer Research Trust

 

Patient experience improvements

Patient experience improvements

We’ve just finished the ninth wave of patient experience research with the Trafford division of Pennine Care NHS Foundation Trust, systematically improving the way the service captures patient experience feedback across its community clinics and home visits and drives change. The team are using the research to drive real quality improvements across the organisation.