• May 27, 2016

Bone Cancer Research Trust – new research on the impact of primary bone cancer marks a turning point for the charity

With the Bone Cancer Research Trust’s 10th anniversary fast approaching and the team thinking ahead to the next chapter, Alterline were commissioned by the Charity to conduct a comprehensive study into the experiences of those who have, or have had, bone cancer and their families and friends.

As part of the research we produced a series of short films to focus on different aspects of living with, or beyond, primary bone cancer. In the film above, Colleen tells the story of her difficult diagnosis and how it took her over five months to get to the point where someone believed her.

To watch more of the films click the links below:

Research for cancer charity strategy.

Primary bone cancer is a rare, yet brutal disease which can have a long-lasting impact on both patients and their families. With very few organisations focussing on the condition a group of bereaved parents came together and registered the Bone Cancer Research Trust in 2006 under the guidance of Professor Ian Lewis, Consultant Paediatrician and Adolescent Oncologist at St. James's University Hospital, Leeds.

Ten years later and with over £2 million invested in research the trust is at the forefront of the fight against primary bone cancer

Our Living with, and beyond, primary bone cancer study highlighted the difficult journey experienced by many when seeking a diagnosis and the aggressive side effects and social impact of the condition and the accompanying treatments. These effects were not limited to the period of having the condition itself; indeed, long-term effects such as mobility issues and fear and anxiety were reported by many in the study. With survival rates at just over half of those diagnosed, bereaved family members also spoke at length about needing to learn to live again after their experience.

Research for cancer charity - Buttton-5

The Alterline team presented the research report at the Charity’s 10th Anniversary conference in May 2016 as part of the report launch enabling the stories of those affected to be heard by the primary bone cancer community.

Research for cancer charity informs branding.

The Alterline research and report has been used to develop a strategy and brand for Bone Cancer Research Trust.

Research for cancer charity - Mid-Image

Meet the team who undertook the project or contact us to find out how we can support your organisation.